Na(HIV)PoWriMo ± April 4, 2017

Kristina England
Painting the Early 1980s

Lesions emerge
into stained tailspin.
Red drowns
art pieces within.

Hogwash men blame homosexuals,
scrawl on billboards,
radio transmit own perpetual
lies into line-blurred

facts. Society trusts, gets sick,
abstracted disease progresses
into collateral chaos epidemic.
Hogwash men realize own mess,

take action. No apologies given.
Leave canvas-cracked skin.

 

Kristina England‘s poems have appeared in New Verse News, Silver Birch Press, and Topology. She lives in Worcester, Massachusetts, where she is a writer and photographer. Follow her at facebook.com/kristinadengland.

SUBMIT to Na(HIV)PoWriMo via our SUBMITTABLE site.

If you want to support the mission and work of HIV Here & Now, consider making a tax-deductible contribution to Indolent Arts Foundation, a 501(c)(3) charity.

We invite you to join our mailing list to receive news, updates, and special offers from Indolent Books (HIV Here & Now is a project of Indolent Books).

Here is today’s prompt

(optional as always)

Write a poem about receiving the news of a positive HIV test in 2017. For some information that might help your poetic process on this topic, check out this page on being newly diagnosed with HIV.

NaPoWriMo Poem 3 ± April 3, 2017

James Casey
Pills and Bills

Pills and bills, currency for sanity.
ECT and cups of tea
Electro-Darjeeling if you please
Tantrums of thumping and vibrating
My sister twirls her hair with OCD abandon;
When can I throw her switch?

Digital pixel-pusher by trade
My oeuvre exists in electric circuits
Twisted representations that wind up
lining bird cages!

And dreams are dreams
whether shocked or shilled.
Poverty of emotion from the chemical warfare
in my brain.

Some day, in a manic bliss
I will go to Paul Stuart:
“I’ll have 12 of those—no cuffs please—pleats please!
Peridot and periwinkle pinpoint oxfords.
Cashmere and argyle with herringbone and tweed.”
Haberdasher for the great crash,
When the zenith breaks
And the valley looms
And everyone pulls back and disappears.

And there is no God on the road to Dibrapore
But at a wedding I went to He seemed to reappear.
Love declared over wine and dancing, who wouldn’t join in?
Love is hard to find while tending the flames of loneliness.
Caged by the fire and burned to the quick.

 

James Casey writes: I studied Literature and Communications at Benedictine University back in the late 1970s and it indulged my love of reading and exploring the writing process. I love poetry that reaches deep into the soul and explores the ironies and struggles of life. I also am a film-o-phile who loves Alfred Hitchcock and Ingmar Bergman movies. I spend a lot of time watching Turner Classic Movies and following the classics. I share my apartment with my cat, Sophia, who is a loving tonic to life.

SUBMIT to Na(HIV)PoWriMo via our SUBMITTABLE site.

If you want to support the mission and work of HIV Here & Now, consider making a tax-deductible contribution to Indolent Arts Foundation, a 501(c)(3) charity.

Here is today’s prompt

(optional as always)

Write a poem about getting tested for HIV in 2017. For some information that might help your poetic process on this topic, check out this page on HIV testing.

NaPoWriMo Poem 2 ± April 2, 2017

Scott Chalupa
Big Roy

How many queens had to help you
overturn and burn that cop cruiser
on the second day of riots? I assumed

you just made it up, and so I never thought
to ask any of those nights when you held court
in the receiving room at Houston’s

Pacifica affiliate. The show was After Hours,
Queer radio with attitude, and you
had shade in spades. You were proof

gay men could live past fifty—some miracle.
You’d prance around the conference table,
rub your Retrovir belly while you recalled

your Stonewall ho-strolling twenties,
then moon over the time you were eight,
having just seen Dino, when you announced

from the back seat of your father’s rattling Ford
that you were going to marry Sal Mineo.
It seems all I do these days is write

about the dead, and I haven’t yet figured how
to write you back into existence. I wish
I’d thought to ask how many girly boys it takes

to set police blue ablaze. I imagine
the cruiser rocking on its crushed roof,
fire pageant-waving from each tire,

you edging the wreckage, Sal on your arm.

 

Scott Chalupa haunts a marginal attic in Columbia, SC, where he is finishing an MFA at the University of South Carolina. He is winner of the inaugural Graduate Student Creative Writing Award in poetry from the South Atlantic MLA. His work has appeared or is forthcoming in South Atlantic Review, Tupelo Quarterly, tap literary magazine, Jasper, Oxford Comma Review, and other venues.

SUBMIT to Na(HIV)PoWriMo via our SUBMITTABLE site.

If you want to support the mission and work of HIV Here & Now, consider making a tax-deductible contribution to our fiscal parent, Indolent Arts Foundation, a 501(c)(3) charity.

Here is today’s prompt

(optional as always)

Write a poem about being at risk for HIV infection in 2017. For some information that might help your poetic process on this topic, check out this page on who is at risk for HIV.

NaPoWriMo Poem 1 ± April 1, 2017

Michael Mackin O’Mara
Dreams in Black & White

Ton souvenir en moi luit comme un ostensoir!
— Charles Baudelaire

My friend, You are dying. Not like the rest of us who think we are
dying every day. Each day the warden walks You through a
darkened hall. Each evening, in stark shadow, the reverend father
Mea Culpas, while the sweep hand of the large white faced clock
lurches, second by second, as it does in every film-noir. Through
each sedated night, You wait.

You wait.

There’s a mob at your door. They clamor like passbook holders in
a Pottersville bank run. They wish to cash in your promises, and it’s
the 80s all over again and your room’s gone retro & tighter than
Studio and since we can’t pass the doorman’s velvet rope we find
ourselves in extended imaginary conversations

where each moment, real or dreamt, is dissected, re-edited
frame by frame, replayed forward and back like a time-lapsed
sunrise.

All around You, as they wake to the moment, are lost in rerun
expectations of every Doctor Gillespie who ever glared intently at
a test tube raised between thumb and forefinger while from
across his forehead beads of perspiration tick, tick, tick like a
relentless clock. They corner your doctor till his god mask
shatters. They create hopes for a new doctor with his god intact.

—the door opens, the door opens again, I lock it,
in the dark, from these dreams, I startle to the soft
click of a door again opening, I see colors I think I
shouldn’t see, the red fabric of the wall, purple dark,
each sun, moon, and star of the printed cloth glows
golden,

for more than a moment I am afraid until
Welcome, I say aloud,

sleep reclaims me as the room
fades to everyday night.

In this dream You’ve become the priest reciting the last rites, in a
gold lined pouch next to Your heart You hold the last Eucharist; in
a crucible, the blessed oils, with Your thumb You smudge the sign
of salvation across my brow. In this dream we weave a tale of
spirit souls swimming a violet sky. In this dream, when You say
You are ready, I whisper: Take me with You.

And, for a time, it seems You do.

 

Michael Mackin O’Mara lives and works in West Palm Beach, Florida. He is the managing editor of the South Florida Poetry Journal.

SUBMIT to Na(HIV)PoWriMo via our SUBMITTABLE site.

If you want to support the mission and work of HIV Here & Now, consider making a tax-deductible contribution to our fiscal parent, Indolent Arts Foundation, a 501(c)(3) charity.

 

Here is today’s prompt (optional as always):

Write a poem about being at risk for HIV infection in 2017. For some information that might help your poetic process on this topic, check out this page on who is at risk for HIV.

National HIV Poetry Writing Month

Here’s what you get when you Google “national poetry month hiv aids 2017”
Missing: hiv aids

That’s right. HIV and AIDS are literally, virtually, digitally, really and truly missing from the celebrations of poetry going on this National Poetry Month 2017.

I’ve been wondering what Indolent Books and our fiscal parent, Indolent Arts Foundation, Inc., a 501(c)(3) charity, could do for National Poetry Month that was different from what everyone else was doing. SHAME ON ME  for not thinking sooner of our own HIV HERE AND NOW PROJECT.

THIS is where we need to focus our efforts for National Poetry Month 2017 and it’s many poem-a-day-for-30-days projects…

…all inspired by my dear friend Maureen Thorson, the founder of NaPoWriMo, (National Poetry WRITING Month) an annual project in which poets attempt to write a poem a day for the month of April.

So here’s the deal. Anybody who wants can write an HIV/AIDS poem for NaPoWriMo and submit it via our Submittable site. We will post one of those poems each day of April. Today, April 1, is going to be a challenge, because it’s already 6:48 pm EDT…but I know this will all work out in the end…it always has, it always does, it always will.

Since we can only post one poem per day on HH&N, we encourage you to post your own poems elsewhere—on your social media feeds, Facebook, Twitter, Instagram, Tumblr, your blog.

In addition, we will be including a DAILY PROMPT along with each day’s poem. You do not have to use the prompt, but you are welcome to if if will help you write. WE REPEAT: To quote Maureen Thorson, the doyenne of NaPoWriMo, “The prompts we post each day are totally optional. Use ‘em if you like ‘em; ignore ‘em if you don’t.”

Here is today’s prompt:

Write about a person who died of AIDS who meant a lot to you. The person can be a well known public figure or someone in your own personal life. Anyone.

For inspiration, you might look at the following poems from the HIV Here & Now project archives

D. Gilson, “Triolet for Uncle Dennis”
Jeffery Berg, “Anthony,”
Daniel Nester, “Four poems from God Save My Queen II”

And that’s it. We are hereby participating in NaPoWriMo.

The HIV Here & Now Poem-a-Day is Back!

HIVFor the month leading up to World AIDS Day on December 1, 2016, the HIV Here & Now project will resume the HIV Here & Now poem-a-day feature. A new poem every day by a different poet from November 1 to December 1, 2016. We know you will enjoy this brief return of the HIV Here & Now poem-a-day.

My Work Doing HIV Testing in Sex Venues

By Stephen S. Mills
Poet and author of He Do the Gay Man in Different Voices and A History of the Unmarried

Stephen M. Mills, HIVThe first image I associated with HIV was Judith Light in the ABC television movie The Ryan White Story, which aired in 1989. Light played the mother of the young boy in Indiana (Ryan White) who became the face of the AIDS crisis after contracting it through a blood transfusion and being kicked out of school. I was seven in 1989 and also a boy in Indiana. For me those early years didn’t have the face of a gay man (like the stereotype that can still persist today), instead it had the face of a kid who had a background similar to mine.

For many of us who grew up in the 1980s and early 90s, HIV/AIDS had a profound effect on how we came of age (especially sexually). We grew up with talk of HIV all around us from misinformation and fear to prevention discussions. Many of us didn’t directly witness friends dying (as we were too young), but we saw the stories on the news, we saw the movies, and we witnessed the fear of our parents and friends when we came out as gay men.

Because of this, many gay men in this age group have a large amount of anxiety and paranoia around sex. We’ve been hounded about condom use our whole lives and taught to associate sex with fear. This has led to sex shaming and negative thoughts regarding one’s sexuality. This has long been a concern of mine and one I’ve touched on in my own creative work as a poet.

Last fall I turned that concern and interest into a career choice. In November of 2015, I began working for a program called Men’s Sexual Health Project that provides HIV and STI testing in sex venues that cater to men who have sex with men in New York City. I now spend many hours a week at sex parties or in bathhouses testing men of all races, ages, and sexual orientations (sexual orientation does not always dictate sexual behavior).

My job is funded through a grant that focuses on priority population testing, which means groups that are at higher risk for contracting HIV. I had never worked in this field before, but I had experience on the other side (getting tested myself). I’ve often been amazed at the lack of skill, information, and professionalism from testers. This is partly what drove me to take on this role that is outside of my educational and professional background.

I wanted to provide people with a sex positive experience where they could truly ask the questions they wanted to ask and not worry about judgment. Shouldn’t this be the norm for testing? Sadly, it’s not. The job is solo, so I’m responsible for a lot, and it is important that I fit into the environment (this is partly what got me the job). The majority of people I test are attending a sex party or bathhouse. Many test with little to no clothing on. I often test people with the sounds of fucking in the nearby rooms or spaces. If you aren’t comfortable, your patients won’t be either.

The service my job provides is unique even in New York. In fact my program is one of the only programs that provides free testing on a regular basis (3 to four times a week) in sex venues. The program is also one of the few that provides free testing after 5 PM on a consistent basis (which is kind of mind-boggling for a city like New York). It is also difficult to find free STI testing. While many places provide free HIV tests, tests for more common infections like syphilis, gonorrhea, and chlamydia are harder to find, which means fewer people get tested for them. My program is also run out of a Mount Sinai clinic, so I have a direct link to getting people care and treatment should they test positive for anything.

I test a wide range of men, from those married to women in the suburbs who use this service because they don’t want to test with their regular doctors, to young men who regularly attend group sex events, to men without insurance, to men who work regular hours and can’t always get tested during business hours, to 70 year old men who have never been tested before. The men I test range in risk factors and education.

A lot of barriers are already broken down for me by testing in sex venues. It isn’t a clinic setting. I wear very causal clothing, I’m easygoing in my approach and almost immediately people feel comfortable and start asking questions. I’m able to address sexual practices, risk factors, PrEP (which is becoming vital to our fight against new HIV infections). I also have personal knowledge of gay sex practices and PrEP, so patients don’t have to worry about my not understanding. I come to them as a peer.

One thing a lot of testers are bad at is thinking they can tell people what to do. You can’t. All I can do is provide education and be open to the people sitting in front of me. You are often put in difficult positions. But I’m not there to tell someone they have to use condoms or have to get on PrEP or have to inform their partners. I’m there to meet people where they are and provide the information they need to make their own educated decisions. In the end, it may or may not be the decision I would personally make, but it is theirs.

While programs like this one are rare, they are vital to our ongoing fight to end HIV. Providing sexual education and testing in sex venues helps create positive connections between sex and sexual health (something many people don’t have). It helps break down years of paranoia and fear. At least once a week, I have someone sitting in front of me truly riddled with anxiety over sex to the point that they aren’t enjoying sex at all for fear of HIV (they typically fall into the age group I mentioned earlier). By being there with information and not fear, I am sometimes able to move them in a better direction. In other situations, I am able to give people real information about PrEP (about which there are frequent misconceptions) and how it can be a great tool for prevention.

In a short amount of time, I’ve been able to see the profound effect of my program. Many men count on our testing and become regulars. I’ve had the opportunity to help a lot of men deal with new diagnoses and get more educated. There are many pieces to helping end HIV and I’m honored to be one of those pieces.

Stephen S. Mills is the author of A History of the Unmarried (Sibling Rivalry, 2014) and He Do the Gay Man in Dif­fer­ent Voices (Sib­ling Rivalry Press, 2012), a final­ist for the Thom Gunn Award for Gay Poetry from the Publishing Triangle and winner of the 2012 Lambda Lit­er­ary Award for Gay Poetry. His poems have appeared in The Anti­och Review, The Gay and Les­bian Review World­wide, PANK, The New York Quar­terly, The Los Ange­les Review, Knock­out, Assara­cus, The Rum­pus, and oth­ers. Stephen won the 2008 Gival Press Oscar Wilde Poetry Award for his poem entitled “Iranian Boys Hanged for Sodomy, July 2005,” which appeared in the anthology Poetic Voices Without Borders 2 (Gival Press, 2009), edited by Robert L Giron. He lives in New York City. Learn more at stephensmills.com.

Men of a Certain Age

By Jameson Fitzpatrick
Poet and author of Morrisroe: Erasures

photo possibility 2To have sex with a man of a certain age in 2016 is to fuck into a continuum of gay male experience that transcends your own. It’s not time travel—the century doesn’t unturn itself—but the act of sex does put you in touch, literally, with a history that is both yours and not yours as a young gay man.

I say “yours” and “not yours” (meaning “mine” and “not mine”) because being gay can be a communal identity but not strictly a generational one. The concept of a queer family is necessarily metaphorical, wherein the points and modes of connection challenge the rule of biology. Queerness, meaningfully, is not a birthright—but nor does it exist in a vacuum, outside of time.

The history into which one enters upon claiming a queer identity today is not only the history of HIV, but it is a history that has been profoundly shaped by AIDS in the last thirty-five years. In the fourteen since I came out in 2002—seven years after the introduction of the highly active antiretroviral therapy (HAART) credited with containing the epidemic in the United States—I have often had the feeling of showing up to a party at the exact moment after something awful has happened, the festivities awkwardly resuming following a heavy silence.

Sex is one way, maybe, to try to understand what happened. When you have sex with a man of a certain age, you are, quite likely, having sex with a man who has had sex with people who died of AIDS, and who, even more likely, has mourned friends who died of AIDS, some of whom he maybe slept with. More than that, you are connecting to him in precisely the same way that, very likely, the friends and lovers he might have lost contracted the virus in the first place. I’m not a very mystical person, but there must be some meaning to this, I think: a historical re-enactment of sorts, but with better technology and the advantage of hindsight.

I hadn’t thought much about this until I fell in love with a man of a certain age, an experience I have already written about ad nauseum. Here’s a day about which I haven’t:

We’re at the Brooklyn Museum to see the exhibition HIDE/SEEK: Difference and Desire in American Portraiture. It’s Sunday, February 12, 2012 (which I only know because it is the day the exhibition closes, which is a Google-able detail in the future). It’s a historic show—the one in which David Wojnarowicz’s video “A Fire in My Belly” caused such a ruckus when it debuted at the Smithsonian’s National Portrait Gallery—so we couldn’t miss it. My boyfriend—a Man of a Certain Age—and I have been together for six months, though we have only been “official” for not-quite-three. I’m newly 22, a senior in college at the Large Private Downtown University where I will also begin grad school in the fall and later teach. I think this is the day I meet the poet Stephen Boyer for the first time, whom my boyfriend knows from Occupy and whom we run into leaving the elevator as we’re getting on. I like the exhibition, though it is more crowded than I’d prefer, being the day it closes and all, and also more white and more male in its representation than seems right. Towards the end of the exhibition, my boyfriend points to one of the works and says, That’s Jerome!” He’s pointing to “Charles Devouring Himself,” Jerome Caja’s riff on Goya’s “Saturn Devouring His Son,” which Caja painted on an aluminum tray in 1991 using a mixture of resin, nail polish, and the ashes of his friend and fellow artist Charles Sexton. Caja died four years later, in 1995, the year HAART was developed, when I was five and probably hadn’t yet heard of HIV. He and my boyfriend had been friends in San Francisco, he tells me, in the queercore days—and so begins our first real conversation about his experience living through the HIV/AIDS crisis of the 80s and early 90s. While reading One Hundred Years of Solitude in grad school, he became convinced that if he finished it he’d die. To this day, he never has. After we make our way through the rest of the show, we go to the cafe for something to eat, where he tells me about other people he knew who died. The cafe is very cold and I grip my paper cup of coffee so tightly it is the detail of the day I will remember best.

After this, I started thinking about it a lot: men who lived through a certain age, men who didn’t and the art they made. Their work, like sex with older men, struck me as another way into this continuum of contemporary queerness. Can it be a coincidence that what would become some of my favorite art was made by people who died of AIDS-related illnesses—poets like Tim Dlugos and Melvin Dixon and Tory Dent, artists like Paul Thek and Mark Morrisroe?

I don’t know if I can answer that question. Maybe it’s just a historical accident of timing, or maybe this work is precious to me because it is finite, fixed. It will be what it will be. And I feel a sense of responsibility not to forget these people, my forebearers—people I might have known if I were thirty years older. And, since I’m a writer, to keep their voices in the room.

It was after going to HIDE/SEEK—the second time I’d seen Mark Morrisroe’s work—that I returned to the publication printed in conjunction with the retrospective of his work at Artists Space in 2011, photo-copied the image of ephemeral text printed on its last page, and began making erasures of it, moving around strips of white paper and obscuring different phrases to make visible the various possibilities still within the vocabulary Morrisroe determined at some unknown point in the past. (The work is untitled and undated.) My materials were cheap: printer paper and glue-stick; and my handiwork admittedly amateurish: gummy and grubby with inky fingerprints. Unsure what to do with them, I kept them in a shoebox until I returned to the project in 2014 to make a chapbook of 24 erasures—this time, the text retyped in Morrisroe’s original lay-out and then whited-out in the document.

The resulting poems, like the original text itself, are about sex and time, anonymity, pleasure, and the tug of pleasure’s eventual end—these phenomena that persist today more or less the same as when Morrisroe wrote of them.

History continues, of course. HIV is not only a historical event—it is a virus that continues to affect the lives of many people in this country, and many more around the world, even as it is no longer a proverbial death sentence for people who have access to treatment (a big caveat both in the United States and worldwide). In the two years since the chapbook was published, PrEP has entered the mainstream and at least one of my erasures—”Bare / back // goodbye / to / that”—is already outdated.

Time makes all of us mortal, regardless of HIV status. But we get to pretend otherwise sometimes—the length of a lay, or, standing before a painting.

The images below are manuscripts of three of the erasures for Fitzpatrick’s chapbook, Morrisroe: Erasures (89plus and LUMA Foundation, 2011).

Morrisroe erasure #1

Morrisroe erasure #2

Morrisroe erasure #3

Jameson Fitzpatrick is the author of the chapbook Morrisroe: Erasures (89plus and LUMA Foundation, 2011),, which comprises 24 versions of a single text by the artist Mark Morrisroe, and his poems have appeared or are forthcoming in The Awl, BuzzFeed Reader, The Offing, Poetry, Prelude and elsewhere. He lives in New York, where he teaches writing at NYU.

Kindness Is the Ultimate Grace

By Jacob Hardt
HIV Here & Now Poet and visual artist

13692499_159225021165496_5052930635272969523_nI’m thinking about shit today. About what’s about to happen to me. About who I am. I want to be strong and I am afraid. I guess I’m looking for courage inside my self…outside my self…. And I remember certain things about my life. I remember times I’ve been sick. I remember my body torn up with AIDS, not being able to feed myself, not being able to walk. I remember hospices and shingles and morphine pumps…. Terrible pain. I remember being shot at and beat with guns, bad drug deals and overdoses. Lying in the streets waiting to die…. Wanting to die. I remember…. Being alone feeling lost and hopeless and being used by people. Rape. I’ve been in some hard places. I think about God at these times. Who is he what is he…. Why…. And when is it over. All these times being so close to my end…. Yes there is…sadness. Profound sadness. But with it a tremendous feeling of peace believing it’s going to finally end.

I guess I’m thinking about the bigger picture…who am I? Who I’ve been….How the fuck I got through.

It’s so easy to get caught up in everyday bullshit, things that really don’t matter in the end. Am I sexy? Am I this? Why don’t I have that? Is easy to be consumed with stupid selfish shit. I can say that when death is close none of that matters.

What dose matter are little moments, flashes of life that meant something special. People you love, first kisses, most important to me…. Kindness and moments of grace, when people did selfless things for me…. And I think…What have I done within my time? How many flashes will I be for somebody else?

I couldn’t be farther away from those dark times today. My life is…I am…Safe. I have no intention of giving up. I am sad but…I’m ok.

Let me tell you why.

Along my path there have always been kind people doing and saying kind things. People loving me…when I didn’t know what love was…. I usually didn’t see it but it was there. Good was there. Most of the time I was too broken or lost to understand how much it meant when guys didn’t expect me to fuck around and were still helpful. I thought they were stupid, who doesn’t expect or want something from me? There were counselors and nurses, sponsors and case managers….

Somehow I’ve always seen life as wondrous and have always found everything interesting, beautiful. For as long as I remember, the stars and moon were my best friends and kept me alive in scary places.

I’m probably rambling …

I guess I want to tell people how much I love them. How much those little kindnesses mean to me. How they saved me.

I feel lucky, like I’m on the advanced course of life and God thinks I can handle the hardest lessons. I can. Honestly I’d be so much less me if I hadn’t been through so much. I see people miss what’s important every day. And to me they sparkle like diamonds. I know every little act of love had the potential to change somebody’s life. Even saying hi to a stranger can change the tone of my day. I know that all people have the same feelings. I know people aren’t ever better or worse than anybody else. There is no evil…. But there is broken. Lost. Loneliness. Selfishness. People do and say awful things because they can’t see beyond themselves.

Most important I know there’s hope for everybody and if you spend time helping make it better for them…You will be free.

Kindness is the ultimate grace.

Grace…. There’s my answer.

I am so glad to be alive

13669499_10210186512278810_4897133117060316470_oEDITOR’S NOTE: My friend Jake is beginning a prison sentence this week. I do not want to go into details here (to protect both his privacy and his safety). but I can assure you that Jake is a man of good works. The picture above was taken at a going-away picnic for Jake in Central Park last week. Each of the men and women in this picture loves Jake and believes in Jake.

Jacob Hardt was born in Grand Junction, Colorado, but grew up on Santa Monica Boulevard  in LA and Polk Street in San Francisco. Working with the AIDS Office of the San Francisco Department of Public Health, Jacob spoke on behalf of the Wedge Program, the first HIV educational program in existence that brought people with AIDS into classrooms (the program ran form 1988 to 2002), and Health Initiatives for Youth (Hi-Fy), an agency that provides health workshops for at-risk youth throughout the San Francisco Bay Area (his poetry and photographs have appeared in Hi-Fy’s Reality Magazine). Jacob currently lives in New York City where he pursues writing, painting, and photography.

Wiesel, Silence, and HIV

By Nina Bennett
HIV Here & Now Poet and author of Sound Effects

The death of Elie Wiesel earlier this month spurred my thoughts on the issue of silence. A Romanian-born American Jewish writer, professor, political activist, Nobel Laureate and Holocaust survivor, Wiesel was determined that the world not forget the Holocaust.

I have been involved in the HIV epidemic since July 1981, when a friend called and asked if I had seen the article in that day’s issue of the New York Times, “Rare Cancer Seen in 41 Homosexuals.” As a healthcare provider with training in medical research, a brand-new virus captivated me. The science of a retrovirus fascinated me until I began seeing what this virus did to people, to friends. My fascination was tempered by anger and frustration with a society that branded HIV as a moral issue rather than a public health one.

In March 1983, the federal Centers for Disease Control and Prevention (CDC) issued a report on current trends in the emerging AIDS epidemic noting that most cases to date had been reported among gay men, IV drug users, and Haitians, with 11 recent cases reported among hemophiliacs. Soon enough, responders to the epidemic in the medical and public health spheres began referring to AIDS as the “4H” disease, because it affected homosexuals, heroin users, hemophiliacs, and Haitians. This characterization conflated risk groups with risk behaviors and heightened the stigmatization of AIDS even before its association with a then-unknown virus (HIV) was confirmed.

SilenceDeath_01A social activist since my teenage years in the sixties, I needed to do more than read newspaper headlines and medical journals. In 1986, six gay activists in New York formed the SILENCE=DEATH Project. They developed the now-iconic poster of the pink triangle (an inverted version of the symbol sewn onto concentration camp uniforms by the Nazis to identity those imprisoned as homosexuals) above the words SILENCE=DEATH. They wheat-pasting these posters around New York City and issued a manifesto declaring that “silence about the oppression and annihilation of gay people, then and now, must be broken as a matter of our survival.” The slogan and the logo are closely associated with the AIDS Coalition to Unleash Power (ACT UP), the direct-action group that was formed in New York that same year with the participation of the SILENCE=DEATH Project members.

When I heard the slogan “silence=death,” it was a perfect fit for my call to advocacy. I lived in Delaware, smack in the middle of the infamous I-95 corridor, mere hours from New York, Philly, and D.C. I marched, I protested, and sadly, I made panel after panel for the AIDS Memorial Quilt.

Silence=death is just as pertinent today as it was in the 1980s. Silence about the challenges of being a long-term survivor can lead to the death of supportive services necessary to maintain health. Silence about the need for increased mental health and substance use disorder services perpetuates stigma and ensures that people will not get treatment. Silence about the difficulties inherent in negotiating sexual relationships, whether gay, bi, trans, straight, let alone HIV-positive, leads to continued transmission. Silence about what it takes to maintain faith, hope and joy while living with HIV guarantees the complacency of a society that thinks antiretroviral medication solves “the problem.” I am continually amazed when I tell someone I work in HIV, and their response is “I thought that was over.”

We need to continue to speak out, those living with and those affected by HIV, in order to ensure that we are not forgotten, and that the legacy of those who can no longer speak out continues. Federal legislation for the Ryan White HIV/AIDS Program requires consumer involvement. While it is much more common now for people living with HIV to become members of HIV community planning councils, many of these groups are still dominated by service providers. Join your local HIV planning council and speak your truth.

Advocacy around HIV does not have to involve marching in the streets. Because so many of the issues facing people living with and at risk of HIV are societal, a good starting place could be to become involved in local issues. Attend public meetings of your city council and speak up for increased funding and services for those struggling with mental health and substance use. Engage in one-on-one conversations with local candidates running for office. They are supposed to represent you, but how can they if they don’t know who you are and what you care about? Talk to your own doctor and dentist about routine HIV testing and pre-exposure prophylaxis (PrEP).

I’d like to close with a quote from Elie Wiesel’s 1968 speech accepting the Nobel Peace Prize:

I swore never to be silent whenever and wherever human beings endure suffering and humiliation. We must always take sides. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented.

 

Nina BennettDelaware native Nina Bennett is the author of the poetry chapbook Sound Effects (Broadkill River Press, 2013) and Forgotten Tears: A Grandmother’s Journey Through Grief (Booklocker.com, 2005). Nina was among the first in her state to be certified to perform anonymous HIV counseling and testing. She also served as a buddy, facilitated a support group, and worked as an HIV/AIDS case manager. Her poetry has appeared in numerous journals and anthologies including Napalm and Novocain, Reunion: The Dallas Review, Houseboat, Yale Journal for Humanities in Medicine, Philadelphia Stories, and The Broadkill Review.

EDITOR’S NOTES:

The 4H’s of HIV. Links all over the Internet will tell you that the CDC coined the phrase “the 4H’s of HIV” but that is not true. That’s why I included in Nina’s post a link to the the March 1983 Morbidity and Mortality Weekly Report (MMWR) where it is clear that they are simply listing groups that had accounted for the AIDS cases seen to date. The MMWR report does not even include the word “heroin,” but rather refers to “abusers of intravenous (IV) drugs.” The phrase “4H’s of HIV” seems to have sprung up in casual discourse among healthcare professionals and was presumably enshrined in various printed and published sources, but to my knowledge was never used by any credible source as a valid medical or public health term.

The SILENCE=DEATH poster. The six members of the SILENCE=DEATH Project were Avram Finklestein, Brian Howard, Oliver Johnston, Charles Kreloff, Chris Lione, and Jorge Soccaras. The image of the original poster included above comes from The Nomos of Images website. There the image is large enough for you to make out the text beneath the image, which reads:

Why is Reagan silent about AIDS? What is really going on at the Center for Disease Control, the Federal Drug Administration, and the Vatican? Gays and lesbians are not expendable…Use your power…Vote…Boycott…Defend yourselves…Turn anger, fear, grief into action.

There is a wonderfully informative post by Avram Finklestein about the genesis of the poster and its relationship to the beginnings of ACT Up on the New York Public Library blog.